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The Midlife Second Wife ™

~ The Real and True Adventures of Remarriage at Life's Midpoint

The Midlife Second Wife ™

Tag Archives: Alzheimer’s

A Short History of Connecting the Dots

07 Friday Mar 2014

Posted by themidlifesecondwife in The Cultured Life, The Writing Life, Transitions

≈ 23 Comments

Tags

Alzheimer's, Chance, Dani Shapiro, Destiny, Fate, Linda Lavin, Michael Maren, writing

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“Only Connect.”
                 —E.M. Forster

One of my favorite childhood pastimes was playing connect-the-dots. I took great pleasure in guiding my pencil from one numbered dot to the next to find out what would reveal itself to me on the page.

Writing is like that. So is life.

And this is a true story.

About two years ago, I was in Manhattan for a conference. It was Sunday, the last day, my travel day home, but after 72 hours in the airless rooms of the New York Hilton, my friend Nancy and I decided we’d escape and treat ourselves to brunch at Sarabeth’s. Being outside felt wonderful, despite the sticky August humidity. As we walked along Avenue of the Americas to the restaurant on Central Park South, I felt the exhilaration I always feel whenever I’m in the city: the rush of traffic, the clusters of strangers moving with and against me on the broad sidewalks, the glint of granite and marble and glass in the summer sunlight. All of this combines to make me feel as though I’m part of something important and larger than myself. The experience also, strangely, makes me feel grounded and secure; at the same time, I’m aware that at any moment, something unusual might happen that could change my course.

That morning, something did.

Nancy and I reached the restaurant and positioned ourselves to join the short queue that had formed outside the door. Out of the corner of my eye, two people emerged, one of them familiar to me. “Linda Lavin,” I said softly to Nancy. And then, for emphasis, to register my out-of-towner’s surprise at seeing a Famous Person, and to make sure Nancy heard me, I repeated, a bit loudly: “It’s Linda Lavin!” Not only Nancy heard me; so did Ms. Lavin, who looked over at me, probably thinking, tourists!

Thus engaged, I said the only thing I could say to justify my rube-like behavior: “We love you!” Linda Lavin smiled. She was wearing a baseball cap, which looked adorable on her, and she continued on her way.

You might think the story ends there, but it doesn’t.

Nancy and I enjoyed a delicious brunch, walked back to our hotel, picked up our baggage from the concierge and parted amidst the foot traffic of a sweltering day—she to hail a taxi for the airport, me to catch a cab to Penn Station.

Settled in Amtrak’s Quiet Car, heading south to Virginia on the Northeast Regional Line, I picked up my iPhone and sent out a tweet that went something like this:

“Spotted Linda Lavin outside Sarabeth’s in NYC…don’t you just love her?”

A moment passed, possibly two, and then, to my surprise, someone with the handle “mmaren” retweeted my tweet.

“Why would somone retweet this?” I wondered. And “who is “mmaren?” I clicked on his Twitter profile, and then on the hyperlink to his website.

A journalist. A filmmaker—something about a film in production. Husband of writer Dani Shapiro. I filed all this away, and tweeted out my thanks to him for the retweet. (For those who might be reading this hundreds of years into the future, tweeting is how people met one another in the early 21st century, without really meeting each other.)

Back and forth we tweeted, during which Mr. Maren followed me. Here’s a brief exchange:

Marci Rich ‏@Midlife2Wife 5 Aug 2012
To @mmaren. Thanks for the lovely follow. Eager to learn more about your film.

Michael Maren ‏@mmaren 5 Aug 2012
@Midlife2Wife Well, it stars the lovely and insanely talented Linda Lavin… info here on FB http://on.fb.me/HI3pY7 

Marci Rich ‏@Midlife2Wife 5 Aug 2012
@mmaren thanks for the link. I’ll definitely take a look. My mom had Alzheimer’s. Part I of her story is on my blog. Will share w/u soon.

I have since followed the development of Maren’s film, A Short History of Decay, with great interest, and I’m eager to see it. Throughout the past year, select film festivals have screened it, and Paladin is releasing it in April 2014. If you’d like to know more about it, here’s an interview, from the Hamptons International Film Festival, with Maren and two of the film’s actors:

I wrote at the beginning of this essay that my Linda Lavin sighting on that humid Sunday morning in 2012 set me on a different course; it was, in fact, a course strewn with dots that I connected, one after the other: my tweet about seeing her led to Michael Maren’s retweet, and my awareness of his film about Alzheimer’s—a topic of great interest to me. Our resulting exchanges led me to seek out more information about the writings of his wife, Dani Shapiro, whom at the time I had not read.

Now, after reading two of her novels; one of her memoirs, Slow Motion; and having nearly finished her newest book, the astonishing Still Writing (which I’m recommending to every writer I know), I have made a discovery. In Shapiro’s work I have found a kindred spirit and a literary soul-mate—as I read her I feel as though I’m filling pages of connect-the-dot workbooks, each one studded with epiphanies.

Here’s one of them: I would like to study with her. I’m at work on a manuscript, and in need of a mentor and guide. I find myself at the end of that long cluster of dots that emerged in Manhattan nearly two years ago, to this spot: I am first on the wait-list for Shapiro’s workshop in fiction and memoir at the Fine Arts Work Center in Provincetown.

I hope and pray I get in. Maybe, if I happen to see Linda Lavin somewhere in the Cleveland area, where I’m living now, I can take that as a good sign.

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Winning ‘Voices of the Year’ Post to be Published

08 Wednesday Aug 2012

Posted by themidlifesecondwife in Midpoints, Relationships and Family Life, The Healthy Life, The Writing Life, Transitions, What's the Buzz?

≈ 2 Comments

Tags

Alzheimer's, Assisted living, BlogHer, Dementia, Health, Life, Open Road Media, Relationships, Voice of the Year

Mother with Alzheimer's

My mother, Angela Alyce Monia Abookire

Early readers of The Midlife Second Wife will remember this post about my mother, but since writing it last November, a few things have happened in its brief existence that justify a return engagement. The post, originally titled “A Tale of Two Deaths: Losing my Mother to Alzheimer’s,” received a “Voice of the Year” award at BlogHer’s recent conference in New York City. Out of some 1,700 entries, BlogHer selected only 110. This is quite an honor for me and I’m humbled by the recognition, since there’s such a huge talent stream flowing through BlogHer’s Women’s Publishing Network. I’m also proud to announce that the post will appear in an e-book anthology being published by BlogHer and Open Road Integrated Media. You might be familiar with Eileen Goudge’s novel The Replacement Wife. Open Road is her publisher. I’d say we VOTY winners are in extremely good company.

BlogHer Voice of the Year AwardI don’t believe that a publication date for the e-book has been decided yet, but as soon as the publishers make that determination I’ll announce the news here and let you know how you can purchase a copy.

Now that my mother’s story is going to have a life beyond the blog, I’ve retitled it. I am also preparing myself mentally and physically for the daunting task of completing her story—possibly for a future book. This post was originally intended to be the first installment in a series—and you’ll be able to read future installments just as soon as I can get them written—but now I’m rethinking the whole writing project. It’s quite possible I’ll end up with a book. We’ll see.

Here then, is my proposed first chapter of Have You Met My Daughter? My Mother, Her Alzheimer’s, and Me.

Have You Met My Daughter? My Mother’ Her Alzheimer’s, and Me

A person with dementia (or Alzheimer’s Disease) suffers two deaths.  The first death occurs when you discover the illness taking hold, erasing the vivacious mind and the vital spirit of the person you once knew. The second death is when the physical body expires. For these reasons, a bereaved person who loses a loved one—first to dementia, later to death—grieves twice. And although much has been written about mid-lifer’s—the so-called “Sandwich generation”—caught between caring for ill or elderly parents while still raising children, perhaps there is room in the literature for one more account. In November 2011, to mark National Alzheimer’s Disease Awareness Month and National Family Caregivers’ Month—and in honor of my mother, whose name was Angela—I began to write a series of essays about how I loved her and how I lost her. Not once, but twice.

“Have you met my daughter?”

This was the question my Mom, who had impeccable manners, regularly posed to co-workers or acquaintances when introducing me to them for the first time.

“Have you met my daughter?”

This was the question my Mom regularly posed to the women seated withher at a table in the secured-wing of the assisted-living facility where I regularly visited her. Without fail, each time I entered the room, she would ask these same women:

“Have you met my daughter?”

There was, of course, tremendous solace in the fact that despite her illness, Mom did recognize me as her daughter. Nevertheless, it was heartbreaking to see how her memory, her very sense of self, had deteriorated. The signs had been there for a while; it just took time for me to connect the dots.

Mom had always been what used to be called “high-strung.” She suffered from panic attacks, and was fearful of many things, including learning how to drive after my father died.

She had also always been something of a pack rat. Today there is a name for this: compulsive hoarding. But at the time when I was grappling with this issue in terms of my own mother, I did not know it was an illness for which there might be a treatment; I simply put it down to another of her eccentricities. I would clear out as much of the clutter as she would permit (there remained piles that I was forbidden to touch), and a week or so later, my efforts were obliterated. It was not at all unlike Sisyphus pushing his boulder up the mountain.

After several years of this, the hoarding had gotten so out of control that I began to fear for her safety. I was finally able to convince her that she needed help, and she allowed me to hire a cleaning woman to do her laundry, dust, vacuum the floor, and keep the bathroom and kitchen clean.

It was ultimately the cleaning woman—or, more to the point, the existence of the cleaning woman—which brought home to me the awful realization that something was far more seriously wrong with Mom than eccentric hoarding.

She and the cleaning woman didn’t hit it off, largely because Mom did not like anyone else touching her things. The woman, goodhearted and a good worker, called me to complain about what she could see was a losing battle. I was struggling over how to handle the situation when it resolved itself. Mom called me late one night in a real panic; I needed to come over at once. There was a terrible problem.

When I arrived, she pointed to a hole in the dining-room window screen—no larger than two inches in diameter.

“That woman you hired is stealing from me,” Mom said in a tremulous voice tinged with outrage. “Do you see that? That’s how she’s getting in. She’s sneaking in, crawling in through that hole.”

To be continued …

NOTE: The Alzheimer’s Association is not responsible for information or advice provided by others, including information on websites that link to Association sites and on third-party sites to which the Association links. Please direct any questions to weblink@alz.org.

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